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Ectodermal Dysplasias

Self Help Clearinghouse

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National Foundation for Ectodermal Dysplasias

National network. Founded 1981. Distributes information on ectodermal dysplasia syndrome and treatments. Provides support programs for families and funds research projects. Quarterly newsletter. Annual family conference and regional conferences, dental implant program and scholarship opportunities. Directory of members for informal contacts among families.
National Foundation/Ectodermal Dysplasias
6 Executive Dr., Ste 2
Fairview Heights, IL 62208-1360
Voice: 618-566-2020
Fax: 618-566-4718
Verified: 2/27/2014

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